Parents demanding NHS pay to send dying sprog to US July 24, 2017 | Registered: 10 years ago Posts: 2,060 |
Re: Parents demanding NHS pay to send dying sprog to US July 24, 2017 | Registered: 10 years ago Posts: 1,227 |
Re: Parents demanding NHS pay to send dying sprog to US July 24, 2017 | Registered: 19 years ago Posts: 9,198 |
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At its heart, the case pitted the right of parents to decide what's best for their children against the authorities' responsibility to uphold the rights of people who can't speak for themselves.
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"There's no moral or legal or medical justification for providing ventilatory continuation in a corpse, other than organ transplant," Father Paris writes in an e-mail. "it's not life support; the child is dead. They're not keeping her alive; they are oxygenating her organs.The family's position is understandable on an emotional level, he adds. They cannot bring themselves to admit their daughter has died,says Paris, who has consulted on the President's Commission for the Study of Ethics in Medicine and who frequently serves as an expert witness in cases involving termination of medical services.
But if you allow a system to say, If the family screams loud enough, we will do what we believe is incorrect, we'll do what we believe is not medically appropriate, we'll do what we believe is wrong, we'll continue to do what doesn't work. If you continue to go this route it's a colossal social disaster.
Re: Parents demanding NHS pay to send dying sprog to US July 24, 2017 | Registered: 13 years ago Posts: 3,978 |
Re: Parents demanding NHS pay to send dying sprog to US July 24, 2017 | Registered: 9 years ago Posts: 88 |
Re: Parents demanding NHS pay to send dying sprog to US July 25, 2017 | Registered: 10 years ago Posts: 1,227 |
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tiredchicken
Actually the parents had raised money (I believe from donations), at least a million dollars or maybe more, so they were going to be able to fund the treatment themselves. NHS wasn't going to have to pay for it. But apparently in the UK they recognize that parents don't "own" their children and that the parents' desire (to keep their child "alive" despite there being no hope for him to get better) must be balanced against the child's rights not to undergo treatment that might cause pain (unclear if he feels anything since he's apparently brain dead) when there is no hope of improvement.
I wonder what they will do with that money now? No breeders or breeder pleasers will be too likely to ask about it.
It really ticks me off how everyone "cares so much" just because this is a little kid. They get all emotional and all they can think is that a little kid has its whole life ahead of him, so of course society should move heaven and earth to give him a normal life. They refuse to hear that this kid is dying no matter what anyone does, no matter what million dollar treatment they throw at him, and the average 70-year-old probably has a longer life expectancy than he does. The child worship is strong.
Re: Parents demanding NHS pay to send dying sprog to US July 25, 2017 | Registered: 12 years ago Posts: 221 |
Re: Parents demanding NHS pay to send dying sprog to US July 25, 2017 | Registered: 8 years ago Posts: 499 |
Re: Parents demanding NHS pay to send dying sprog to US July 25, 2017 | Registered: 15 years ago Posts: 3,842 |
Re: Parents demanding NHS pay to send dying sprog to US July 25, 2017 | Registered: 10 years ago Posts: 880 |
Re: Parents demanding NHS pay to send dying sprog to US July 25, 2017 | Registered: 10 years ago Posts: 1,227 |
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addiea raine
What I found truly ironic is the same bleeting sheep screaming for the government to butt out of a "family decision" are the same ones who scream the government should cut off a woman's access to birth control and abortion. Hypocrites.
Re: Parents demanding NHS pay to send dying sprog to US July 25, 2017 | Registered: 12 years ago Posts: 2,761 |
Re: Parents demanding NHS pay to send dying sprog to US July 25, 2017 | Registered: 13 years ago Posts: 2,701 |
Re: Parents demanding NHS pay to send dying sprog to US July 25, 2017 | Registered: 9 years ago Posts: 88 |
Re: Parents demanding NHS pay to send dying sprog to US July 26, 2017 | Registered: 13 years ago Posts: 7,757 |
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tiredchicken
I think one of the articles I read said that the parents each have one defective copy of the affected gene, but they didn't know it until Charlie started having problems and was tested.
They've made noise about wanting to take him home before, if I'm not mistaken. Not sure how that is supposed to work since he is on life support. If they take him off, won't he just die before they can get him home? I suppose they want to take him home with a full life support system so he can die at some point at home. But he doesn't even know what "home" is, so this is another thing that is more for the parents than for Charlie.
Re: Parents demanding NHS pay to send dying sprog to US July 27, 2017 | Registered: 9 years ago Posts: 88 |
Re: Parents demanding NHS pay to send dying sprog to US July 28, 2017 | Registered: 10 years ago Posts: 1,227 |
Re: Parents demanding NHS pay to send dying sprog to US July 28, 2017 | Registered: 13 years ago Posts: 1,367 |
Re: Parents demanding NHS pay to send dying sprog to US July 28, 2017 | Registered: 9 years ago Posts: 3,712 |
Re: Parents demanding NHS pay to send dying sprog to US July 28, 2017 | Registered: 9 years ago Posts: 3,712 |
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kman
Charlie Gard has died today, 28 July 2017.
Clearly, his parents were unwilling to accept the inevitable and kept clutching at straws until no straws remained. In that respect I don't have much sympathy for them.
But I also found the British government's overweening attitude about the child, even preventing the parents from taking the child out of the hospital for any possible treatment, alarming.
The rest of us here really need to think about this, especially since I suspect the US will eventually have some sort of government-operated medical care system for everyone—and such distressing decisions affecting "too-expensive" patients of all ages will become common. "You have cancer? Sorry, that costs too much, but we'll give you this pill for assisted suicide."
That type of bioethics is already in place here, and critic Wesley Smith has noted on his blog that similar court decisions to those affecting baby Gard have already happened in the US. Texas has a law allowing doctors and hospitals to end life support over the family's wishes, and the only option is to find another hospital willing to continue the treatment. The family cannot file suit in Texas to prevent ending life support. We're all targets for this manner of being thrown under the bus—not just babies such as Charlie Gard.
Re: Parents demanding NHS pay to send dying sprog to US July 28, 2017 | Registered: 9 years ago Posts: 441 |
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kman
But I also found the British government's overweening attitude about the child, even preventing the parents from taking the child out of the hospital for any possible treatment, alarming.
The rest of us here really need to think about this, especially since I suspect the US will eventually have some sort of government-operated medical care system for everyone—and such distressing decisions affecting "too-expensive" patients of all ages will become common. "You have cancer? Sorry, that costs too much, but we'll give you this pill for assisted suicide." .
Re: Parents demanding NHS pay to send dying sprog to US July 29, 2017 | Registered: 10 years ago Posts: 1,227 |
Re: Parents demanding NHS pay to send dying sprog to US July 29, 2017 | Registered: 13 years ago Posts: 1,367 |
Re: Parents demanding NHS pay to send dying sprog to US July 29, 2017 | Registered: 10 years ago Posts: 1,227 |
Re: Parents demanding NHS pay to send dying sprog to US July 29, 2017 | Registered: 8 years ago Posts: 499 |