http://news.bbc.co.uk/1/hi/health/4770154.stm
this is from the UK
**
Baby MB, who cannot be named, has spinal muscular atrophy - a genetic condition which leads to almost total paralysis - and cannot breathe unaided.
Doctors treating the 17-month-old say it is in his best interests to withdraw ventilation and to let him die.
But his family says he has a reasonable quality of life and should stay alive.
They feel he can recognise and respond to them, and that he gains enjoyment from spending time with his family.
It is a recessive genetic condition passed to a baby when both its parents carry a certain gene **
the sequel
***http://news.bbc.co.uk/1/hi/health/4810180.stm
She said he was responding to treatment and could wiggle his fingers and toes and followed her round the room with his eyes.
"The doctors weren't there to see it but in my eyes he did (respond) - not just because I wished it but because I saw him do it," she said.
The baby's father described how the whole family enjoyed visiting him in hospital.
"It's not like we suffer to go there - we enjoy his company as well. ***
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