I had a family history of cancer too, uterine and ovarian.
I hear you on the hurting. I kept telling all these damn doctors, I hurt all the time, how am I supposed to know when something is really wrong? In the end I had yet another complex ovarian cyst which was continuing to grow so removing everything was a no-brainer.
If you were offered a hysterectomy at age 19, they must have wanted you to keep your ovaries. The only cure for PCOS is ovary removal which is very drastic in a young person. Removing the uterus doesn't cure it--you won't be bleeding to death every month, but the endo will just grow somewhere else. It's driven by ovulation and the monthly cycle.
Given your age and CF status, I would take a hysterectomy however I could get it. Hormones come in handy anyway for sex drive, sleep, bone health, etc. If you can tolerate the Pill, you could use that to suppress ovulation. I took a course of Lupron Depot and that helped too. There's a lot of hysterical, Moo-type information out there about Lupron, because it's also used by WannaBreed Cows to suppress ovulation before they jack themselves with fertility drugs. I felt energetic and great on Lupron, but you can't stay on it longer than six months because it's bad for your bones.
I had great pain reduction with a total hysterectomy. Two years after the procedure, I opted to take the lowest dose of bio-identical hormones for various reasons. Keeping the dose low doesn't allow the endometriosis to ramp back up again.
Quality of life matters, ya know? If my uterus and ovaries were not reproductive organs, they would have been gone before I was 25. It's hard to find sane information out there because medicine has become so pronatalist.
Just yesterday I was talking to a friend whose cousin had ovarian cancer "two or three years ago" and she just had a baybee. Right after she finished chemo she got knocked up. ARE YOU FUCKING KIDDING ME? The gold standard for treatment of estrogen-positive cancer is ovary removal, but medicine is caving because hysterical cows can't bear the thought of raising a kid that doesn't have Their Own
TM DNA, even if it kills them to have that baybee.
When I was researching this issue, I found
this doctor's website.. It's a great source of information and I particularly liked
this article, which is a REASONABLE discussion about removing ovaries. She appears to be a doctor who considers the MEDICAL REASONs for these procedures and that pain reduction and quality of life are valid reasons for surgeries.
I'll get off my :sbx now. I suffered way too long due to fucked up, pronatalist medicine. I hope your journey is better than mine.