I think that the reason that Progeria is such a medically captivating disease is that those who are born with it basically hold the biological "secret" to aging. If specific reasons for aging can be discovered other than the age old "the cells just die", then that of course means that a "cure" can be invented or at the very least, a drug to vastly slow down the process. I can not help but wonder if the medical groups who "treat" these kyds are not also looking at them as experimantal test subjects and that the "studies" and MILLIONS donated and allocated for "research", might not be for a cure for Progeria at all, but rather for a cure to aging or age related diseases. I really don't know, but I am suspicious of groups who claim to want to "help" these kyds and who raise millions for "reasearch", when it is very likely they can do no more than treat symptoms as they arise, much like they do with elderly people who become ill with heart disease, arthritis, alzheimers, etc.....
Progeria is so rare that up until recently when the famblee had the 4 kyds born with it, no one really knew what caused it. Obviously it is genetic, which I think most medical experts on the subject had suspected that for some time anyway. Now that it is known to be genetic, WHY would anyone sentence their kyd to this AWFUL disease? They are literally 90+ years old (biologically) by their tenth birthday(if they live that long) with all of the age related problems, and then some. How cruel would a breeder have to be to continue to spawn kyds with debilitating diseases? Their level of unabashed selfishness never ceases to amaze me.